1.) The Hydrocephalus Foundation, Inc. http://www.hydrocephalus.org/.
The Hydrocephalus Foundation, Inc., also known as HyFI, is a nonprofit and registered organization that provides education, support, and networking possibilities to patients, family and friends affected by hydrocephalus. Greg Tocco founded HyFI in 1993 in order to "give back" the support and resources that he received during his surgical procedures and recovery process. HyFI promotes research and facilitates training of healthcare specialists to improve treatment and patient outcome. The website is designed to introduce you to the organization and the people who run the foundation. The website also provides facts, updates the public with upcoming events and suggests links to help find additional information about hydrocephalus.
2.) National Hydrocephalus Association http://www.nhfonline.org/
The National Hydrocephalus Association (NHF) was founded in 1979 as a non-profit public service organization. They strive to assemble and disseminate information about Hydrocephalus, establish a communication network among families and patients, help others obtain a deeper understanding of the illness, promote research and increase public awareness. Their website is helpful in that it provides surveys, articles, stories, general information and ways to contact specialists.
No comments:
Post a Comment