1.) The International Federation for Spina Bifida and Hydrocephalus http://www.ifglobal.org/home.asp?lang=1&main=1
The International Federation for Spina Bifida and Hydrocephalus (IF) consists of 32 regional and national umbrella organizations in over 50 countries for the two illnesses. It’s goal is to provide information throughout the world to all parties involved: doctors, patients, families and volunteers. Their site includes an extremely in depth look at Hydrocephalus as well as the main treatments offered. It provides information on human rights and how the syndrome is affecting developing countries. The site comes in six different languages and also contains a newsroom and a forum.
2.) Hydrocephalus 2008 http://www.hydrocephalus2008.com/
Hydrocephalus 2008 is an event held in Hannover, Germany on September 17 – 20th. The event is hosted by Carsten Wikkelsö, Gotebörg University. The event is held for professionals from all areas of Hydrocephalus to present up to date experimental and clinical research to improve everyone else’s understanding of the illness. This website gives program information, a way to submit a personal abstract, a way to register. It also provides a link to The International Society for Hydrocephalus and Cerebrospinal Fluid Disorders (ISHCSF) which is also a very informational organization.
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